A MOTHER who beforehand needed to resort to bringing unlawful cannabis oil into the nation to deal with her son’s epilepsy has develop into the primary particular person in Scotland to have the ability to supply the drug legally.
Karen Grey, 44, travelled to the Netherlands each few months to purchase oil from the entire cannabis plant, which comprises the psychoactive ingredient, tetrahydrocannabinol (THC). Regardless of her fears of being caught by Customs officers, it’s the solely therapy she has discovered to enhance her son Murray’s seizures.
Grey says she is now “massively relieved” as an nameless provider has obtained a licence from the Dwelling Workplace to import the drug legally and promote it via a pharmacy in Glasgow.
Grey mentioned: “It’s wonderful information. We knew we’d get pulled at Customs ultimately, it was all the time so tense going via the airport.”
Dwelling Secretary Sajid Javid authorised using medicinal merchandise derived from cannabis final yr however they will solely be prescribed by specialist physicians and can’t be imported till a prescription has been issued. Stories recommend only a few prescriptions have been issued.
The British Paediatric Neurology Affiliation claims THC could negatively have an effect on mind growth, construction and psychological well being.
Murray acquired his first course of a brand new authorized drug epilepsy drug containing CBD – known as Epidiolex – in August 2018. It initially appeared to work, however the constructive results subsided after three months and Murray was admitted to hospital in January unable to “eat, speak or stroll”.
Grey mentioned she thought her son “was going to die”, till a Dutch physician prescribed a drug containing THC.
Murray started therapy on Bedrolite in March, and Bedrocan in Could. He’s nonetheless responding nicely to therapy and is now capable of play and attend faculty. His mom is now campaigning to get Murray a prescription for the medicine on the NHS. Even at price value, a 10ml bottle of Bedrolite prices £170 and lasts simply 4 days.
The treatment is costing Grey and her husband about £1500 a month, which they’re paying for via donations. She mentioned: “It’s been an enormous wrestle. The NHS must step in and pay for it.”
Grey is campaigning with Lisa Quarrell, from East Kilbride, South Lanarkshire, whose son Cole Thomson additionally takes Bedrolite for epilepsy, which Quarrell has been capable of supply from a London observe.
Each have urged Well being Secretary Jeane Freeman to authorise “compassionate funding” for the drug from NHS Scotland. The mums have been a part of the group which efficiently petitioned Downing Road to legalise medical cannabis, after gathering over 230,000 signatures.
Two kids in England and Northern Eire at the moment are receiving NHS funding for Bedrolite beneath an distinctive licence, and Grey desires to see that prolonged to different kids.
A Scottish Authorities spokesperson mentioned: “It’s not for the Scottish Authorities to intervene in prescribing selections.
“If a clinician prescribed an permitted Hashish Based mostly Product for Medicinal Use utilizing an NHS prescription then it will be distributed freed from cost in Scotland.”